Validation of the Swedish trauma registry (SweTrau)

Abstract text (incl. references and figure legends)

Introduction

Validation of registries is essential to ensure solid and reliable research data. This is often done by comparisons of the original registry data with other sources, e.g. another registry or re-registration of data. The Swedish Trauma Registry (SweTrau) [1] was founded in 2011, with variables based on international consensus (the Utstein Template of Trauma [2]). This project aimed to perform the first validation of the SweTrau registry.

Material & Methods

On-site re-registration was performed on a number of randomly selected trauma patients and compared with the original registration in SweTrau. Accuracy (exact agreement), correctness (exact agreement plus data within acceptable range), comparability (similarity with other registries), data completeness (1-missing data) and case completeness (1-missing cases) were determined as good (85%), adequate (70-84%) or poor (<70%). Correlation was deemed as either excellent (0.8), strong (0.6-0.79), moderate (0.4-0.59) or weak (<0.4).

Results

The data in SweTrau had a strong to excellent correlation (87.5%), with good data completeness (88.5%), accuracy (85.8%) and correctness (89.7%). Median time to registration was 4.5 months, with 84.2% registered after one year. Case completeness was 44.3%, however; for NISS>15, case completeness was 100%. The comparability showed an accordance with the Utstein Template of Trauma of almost 90%.

Conclusions

The validity of SweTrau is good, with high accuracy, correctness, data completeness and correlation. The data is comparable to other trauma registries using the Utstein Template of Trauma; however, timeliness and case completeness are areas of improvement.

References

Swedish Trauma Registry (SweTrau). 2020 07-26-2020]; Available from: http://rcsyd.se/swetrau/. Ringdal, K.G., et al., The Utstein template for uniform reporting of data following major trauma: a joint revision by SCANTEM, TARN, DGU-TR and RITG. Scand J Trauma Resusc Emerg Med, 2008. 16: p. 7.

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